![]() You will get an online tax receipt right away.Īnd today’s song? “ Magic” was Olivia Newton-John’s hit from her 1980 soundtrack album Xanadu. It is coming on time for Relay for Life! Hoping you all can make donations. The Dallas doctor said he would never have me fly all that way and spend all that money if he were not optimistic he could repair me in a less invasive and catastrophic way. If I can be repaired, I cannot have it done before October, after my chemotherapy has ended. Of course, he cannot commit if he can help me until he sees me. ![]() So I will be flying to Dallas in late June for a consult. His patients in Dallas love him and believe in him so much that they have offered to put me up in their houses!!!! Not only that, but this doctor is a dead ringer for Mark Dorreen, beloved oncologist of The Cancer Olympics fame. He agreed to review my records – and low and behold HE CALLED ME AT HOME!!! We spoke for about an hour, and he was every bit as knowledgeable and compassionate as his devoted fans said he was. Not great choices.īut a wonderful option for a second opinion has come about through warm, spooky Facebook magic! Learning of my plight on FB, a woman with the same rare name as my mother (Janette) texted her own surgeon, a pelvic reconstruction expert of great renown in Dallas Texas. A local urogynecologist has said she can repair it, but I would be left with a vagina only one inch long. It feels good to have some enjoyable things to look forward to, no matter how blighted I am.Īs for the bladder defect, the NS urologist is of the opinion that an open abdominal repair is too risky, and instead wants to give me a permanent urostomy. And Andrew, ever the engineer, is installing an electric assist on our bicycles. It will help me get around Paris without taxing my feet. To help forestall this problem, we have invested in a transport chair – sort of a stroller for adults. Last time I was on this drug I developed “hand and foot syndrome,” in which the soles of the feet become so hot they blister and peel. I am hoping that I can manage these adventures, given the defect and the oral chemo I am on. So we are proceeding with summer plans, which involves camping in our little trailer and our river cruise in Paris. But I know I must fight this desolation – otherwise, I will go under. ![]() When they told me I will have to live this way for 7 more months, I went as low into despair as I have ever been on this journey. ![]() However, my quality of life is marginal given my iatrogenic VVF bladder defect. I am doing well in terms of overall energy and lack of pain. It has now been over three months since the mother of all surgeries. ![]()
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